北京血友之家罕见病关爱中心成立于2012年2月，我们中心的宗旨是为提高全国血友病病人的生活质量而努力！我们的主要工作是开展血友病患者及其家庭在教育、医疗、心理关怀、就业方面的救助活动；开展针对患者的资金救助或者药品援助;开展血友病知识宣传教育等活动；组织医学专家、学者、病人等开展血友病咨询服务。 我们的定位：以解决血友病群体的实际困难为运作核心，帮助患者更好的生命、生存、生活而努力奋斗。 我们的目标：为血友病群体提供除医疗救助以外在教育、技能培训和生活等多方面的全面帮扶。在社会组织评级方面，2016年获得5A单位。 Beijing Hemophilia Home Care Center was established in February 2012, our center aim is to improve the national hemophilia patient's quality of life and efforts!Our main work is to develop hemophilia patients and their families in education, health care, psychological care, employment assistance activities; To carry out the patient's financial aid or pharmaceutical aid; To develop hemophilia knowledge propaganda and education and other activities;Organization of medical experts, scholars, such as patients with hemophilia advisory services. Our positioning: hemophilia group, in order to solve the actual difficulties for the operating core, help patients to strive for a better life, survival and living. Our goal: besides medical assistance are provided for hemophilia groups in the aspects of education, skills training and life support. In social organization rating, in 2016 won the 5 A unit.